Wednesday, May 20, 2015

Hallie-isms, Wesley and Mother's Day

Hallie-isms

Happy Birthday- whenever we ask if she is happy, she says she is happy birthday (and has for months)

A'cause, for a Christmas- she says this one whenever you ask her why, or she just says "a-cause" (because)

Whenever I try to call the baby Wessie or Westerly she says, "No, it's Baby Wethley!"

Whenever she goes to bed she says, "Wuthu too, night!" (Love you too, night!) We've all started saying it. She says it to the kids when they go to school. So cute.

Her favorite knock knock joke is the boo-who one, only hers goes like this, Knock, knock. Who's there? Don't cry, s'a joke. (she leaves out the boo part)

She gets really mad when we turn her shirt towards her tummy to put it on and yells, "No, it's backwards!" She doesn't get that it will end up the right way and usually puts her shirts on backwards because of it.

Putday Pawty (Birthday party)- She got invited to her first birthday party a couple of weeks ago and would not stop talking about the putday pawty that she went to. She even slept with the invitation.

Mickey Mouse Tubhouse (clubhouse)- this has been her favorite show for months. Unfortunately, Netflix only has one episode (the road rally) so she watched it over and over again.

Real and Fake Remote- Since Hallie always wants to hold the remote, Connor gives her an old remote that doesn't work and tells her that she has the real remote and his is the fake remote. It seems to work. Sometimes she asks where the fake remote is.

Up... Pie (up high) and Apples... Sauce- said with big pauses between the words

Sit on Santa's Yap- ever since she sat on Santa's lap (and screamed while she slid off), she always talks about it. At first she would say that Santa is really scary. Now she always says that she got things from Santa, like her belly button.

He is so tute- referring to baby Westhley

Tose a door (close the door) and Oh-oh it (open it)

Yelling "YA-YIN!" in the middle of the night. She shares a room with Erin now so she often wakes her up yelling her name.

I asked Hallie to go get a diaper and she didn't want to. After a little bit she said, "Fine" and went and got one.

This picture cracks me up. I came home one night and all the kids were in their pajamas. I didn't recognize the shorts that Hallie had on until I looked a little closer and saw that they were Wesley's 0-3 month size pants! You know your two year old is skinny when she fits into her newborn brother's clothes.
She loves getting her picture taken. Whenever I want to take one of Wesley, she insists on getting hers taken too. She is such a cute, funny and sweet kid and is growing up so fast.

Wesley

Wesley is two months old! He started smiling a couple of weeks ago and looks so cute when he smiles. He is growing a lot and is a very solid/chunky guy. He weighs almost 11 lbs. now. He eats really well and acts happy, but his immune system is still compromised. His poop has been really runny since he was a week old (not normal newborn poop), which is an indication that his gut hasn't built up the good bacteria yet after the antibiotics killed it all. We still can't take him very many places because the doctors are worried about him getting sick. We've been lucky so far, especially with so many kids around him constantly. I would hate to have to give him another round of antibiotics.

He is an okay sleeper, but is not on any sort of schedule. He takes all of his naps in the swing or snuggling with me on the couch. Nights are pretty random. There were three nights in a row that he slept a solid 4 hours and the fourth night he slept for 6 hours! It was amazing (though I do recall still feeling like a zombie all day). After those great nights, he started waking up every 2 hours again. What can you do?

I love this little guy so much! I am looking forward to being able to take him more places and to feel like his immune system is more solid when we do.



Mother's Day

I completely forgot about Mother's Day until Jared and 5 of the 6 kids came and woke me up with breakfast in bed (Connor has been sleeping in super late recently). I got some great home made gifts including a hard bound book of poems about me from Erin. So great. I got to go to church and see the kids sing for Mother's Day. We took some pictures after church. All of a sudden this looks like a lot of kids! They are all so amazing and interesting. I couldn't imagine not being a mother. It is the greatest blessing in my life. Even though it can be challenging, there are so many moments that make having them around so great. I feel so blessed!



Friday, May 1, 2015

Easter

Okay, I have to admit, it's hard for me to even remember Easter. Everything is kind of a blur right now for me. Although, last night was the first night that I have slept for 4 hours in a row since the baby was a week old. It was glorious. I didn't have much time to prepare for Easter, so we had it a week late. The girls got to pick out their dresses and the boys got new ties.








 Somehow we managed to dye eggs. Not a complete disaster this year.

And then there was the annual Easter egg hunt/lunch at my Aunt Kathleen and Uncle Bud's ranch. My kids look forward to it every year. I sent Jared with the 5 kids while I stayed home with Wesley. He had just gotten his PICC line out the day before and had a compromised immune system (he still does).
 As if the kids didn't get enough candy with the egg hunt, there was a piƱata that my kids loved.
 Riding horses and exploring Bud's collection of sheds is always fun.

Tuesday, April 7, 2015

Wesley's Hospital Visit

When Wesley was 7 days old, he started to feel a little warm to me. I took his temperature with our usual ear thermometer and it didn't show that he had a fever. Besides, Jared said that he felt fine so I figured it was just me. The next day, he was really sluggish and was sleeping a lot. But, you know, newborns do that... they sleep a lot. I took some amateur newborn pictures in the morning and he slept a lot the rest of the day. It seemed like I had to wake him up and kind of make him eat, but he did still eat. Finally at around 9:00 pm when I woke him up to eat, I knew he felt extra warm.

That's when I remembered that they had told me to take his temperature under his arm pit and not his ear. I don't know why I didn't think about it the day before, but you know, sleep deprivation. And all those papers they give you when you leave the hospital about when to call if your baby has a problem? I always just brushed those aside because my babies have never had any of those problems. Until this one. When I finally found the right thermometer and took his temperature it was 102.2. That's when I really started getting worried. I called our doctor and the after hours nurse said to take him to the Emergency Room. That is what I thought, but I wanted some validation.

I took him in at around 10 pm and said that my baby had a fever. How high? 102.2 How old is your baby? 8 days... that's when they immediately took him back to look at him. They began sticking things in every part of his little body--a rectal thermometer, a urine catheter (twice), a nose swab, an IV in his little arm and worst of all, at least for me to watch, a lumbar puncture. I almost passed out when they did the lumbar puncture. Ew. Thankfully, the fluid was clear and didn't look infected. They also did a chest x-ray and gave him two types of antibiotics. At some point the doctor came in and said that it was looking like it was probably a UTI, but that we needed to be admitted to Primary Children's Hospital. It was 3:30 am before we were able to leave the ER. Luckily, they let me drive him myself instead of transporting him in an ambulance (like we need any more medical bills).



Once we got to Primary Children's, everyone that entered the room took great care to wear a mask, cover and gloves every time they saw Wesley. And there were lots of people coming in to look at him. That lasted until the next day. The first time they took his temperature up there it was 104.2! Yikes. At least I felt validated in taking him in. He really was sick. They gave him some tylenol and the fever started coming down. I was so extremely tired after staying up all night with him. I was so thankful when one of the techs offered to hold him so I could sleep a bit. I got 2 hours of sleep that night. When I woke up, Wesley not only had all the monitors on him, but they also had oxygen going. Poor little guy!



For the rest of the day he did not want me to put him down. This was especially hard because I couldn't move much further than the uncomfortable rocking chair because of all the cords he was hooked up to. My phone had died and I didn't have a charger, so somebody found something that would plug into the computer across the room to charge it. But I couldn't reach it while still holding Wesley. The phone in the room had a tiny cord so I couldn't reach that either. Frustrating, especially since I needed to let people know what was going on.

Later that night they moved us to a different room with a more comfortable bed for me. Unfortunately, Wesley still didn't want me to put him down much so I held him most of the time. We ended up being there for four days, and I felt like I couldn't leave him because of nursing. He also seemed to want to nurse every hour for like 5 or 10 minutes. So he was basically just snacking and not getting a full meal. It was so exhausting to me to have to feed him so often. I would sleep with him in the chair as much as I could, but it was very tiring. I was so happy to have Jared and the kids visit, as well as my parents and sister, and some good friends and a sister-in-law come. It definitely helped pass the time and give me a break. Jared took the whole week off to take care of the rest of the kids at home and our neighbors were so kind to make our family dinners that week.

They found out on Monday morning that his blood culture came back positive for E. Coli. They think that he must have first gotten the UTI from stool getting into his urinary tract, and then because he was so little, the infection got into his blood stream. However he got it, I was so grateful to have caught it before something worse happened. The infectious disease team said that E. Coli is one of the most common infections they see in infants and that it would be pretty routine to treat with the right antibiotic. But they wanted to make sure that the bacteria wasn't reproducing and so they needed two new negative blood cultures in order to let us go home. Since each one took 24 hours, we had to stay until Wednesday.


He was definitely responding to the antibiotics because he hadn't had a fever since Sunday and everything else looked good. We were able to take his oxygen off on Monday, but still had a bunch of other wires and cords to deal with. They had to give him the antibiotic through an IV, and since they don't last that long, they had to give him three different IV's.



Before we could leave, they were going to put a PICC line in his arm so that we could give hime the antibiotics at home. PICC lines last longer because they go directly into the main vein near the heart. Since he was so little, they had to take him down to a special area in the hospital where they could look at the line with an ultrasound while it was going in (the vein they used was only 1 mm in diameter). They also weren't sure if they were going to need to sedate him or not. Because of that, he couldn't eat for 4 hours before the procedure. That is so sad for a newborn, especially one that wants to eat every hour! Two hours before he could have 2 oz. of Pedialyte but that was it. Then, when they tried to give the last dose of antibiotics through his IV right before they took him down, his IV started leaking. They called the IV team up to get him a new one and within 5 minutes the team of 3 were there and done. That's all they do all day so they are pretty good at it.

Anyway, it was not easy to leave little Wesley when they were putting in the line. Luckily, they didn't have to sedate him. They only gave him a little sugar water on his pacifier and he stayed still. If they had needed to sedate him we would have had to stay another day in the hospital. He's my only baby that has ever taken a pacifier, even though I tried with all of them. This was a huge blessing in the hospital when he really needed comfort during some rough things he had to go through.



Once we got home, a home health nurse came to teach us how to give him the antibiotics through his PICC line. It was going okay until Friday when we could not get anything through his line. That was kind of scary. We had about 5 nurse visits to resolve the problem. We ended up putting some Cathflow into is line (1 ml was $100!) and then had a nurse come take it out 8 hours later. It is supposed to break up anything, like blood clots, in his tiny line. After that it went a bit smoother. We found that if he is in certain positions or if he is tensed up or or moving at all, then nothing will move through his line. We are very ready to be done giving them to him! Over all we have to do 33 doses, one every 8 hours. Hopefully when we are done, he will be good to go, although they say his immune system may be a bit compromised for a while.

This kid! He really is such a sweet piece of heaven in our home and a very good baby. We all love him so much (but probably nobody more than me!) and hope that he will be healthy from here on out.

Monday, April 6, 2015

Newborn Pictures

These were the pictures I took of Wesley when he was 8 days old. That night was when we took him in to the hospital. I guess I'm glad I got these when I did.